I learned a few days ago that Lymphedema has it's own awareness ribbon & pin. I was pretty impressed because so many people haven't heard of the disease. I never heard about it until the doctor told me I had it.So I ordered the pin in the picture on the left. I figured maybe talking about it would spread awareness. They need so much more research for this disease as it is incurable. That word scares the crap out of me. But luckily it is manageable.
Taken from National Lymphedema Network - "Gradually becoming a nationally recognized symbol for lymphedema awareness and the inspirational movement behind it, the transformational butterfly represents the journey of lymphedema over the past 15 years, from complete obscurity to the gradual light of awareness that is beginning to shine on this largely unrecognized and under-treated epidemic."
Speaking of manageable, I wanted to give you all an update on what this past week in therapy proved to me. I suck at wrapping myself. So much so that my therapist asked me to stop wrapping myself and for her to only do it when I go to therapy. See here is the deal. Michelle and Mabelle (Bud's French twins) and I still cannot connect for them to show me their art in flexibility. Gumby is too busy. So what this leaves me with is myself half-assing it. Well the times that I attempted it I caused more harm than good. I actually made fluid move into my foot because I gave myself bad compression. My therapist said to me that no compression is better than bad compression. So, ladies and gentlemen...I am getting fitted for that Farrow Wrap ™ on Thursday. It should only take a few days for them to custom fit them. So I get wrapped on Monday mornings, Wednesday mornings & Thursday evenings which last until Friday evening. So I will be wrapped 4 days a week until I get the Farrow Wrap ™ I will continue therapy and look like the Michelin Man ™ on those days and on my off-therapy days I will don the Farrow Wrap ™ My therapist says in about a month I can get fitted for the custom compression garments for daytime use and the Solaris ™ night garment for nighttime use. That is what I will wear when I'm done with therapy. I can also sustitute and use the Farrow Wrap ™ for either day or nighttime wear. Ahhh, decisions, decisions. What to do. I'm going to be such a fashion plate. Can't wait to feel how hot all this is going to be in the summer. Ugh!
The post below this...I got lazy and put both Saturday 9 AND Sunday Stealing together.
I will leave you with this Laugh of the day:
My hubby sent me this joke...thought I'd share it with you all.
Another new illness to watch out for - Anal Glaucoma
A woman calls her boss one morning and tells him that she is staying home because she is not feeling well.
"What's the matter?", he asks.
"I have a case of anal glaucoma," she says in a weak voice.
"What the hell is anal glaucoma?", he says hastily.
She replies - "I can't see my ass coming into work today."
7 comments:
Good to hear from you. You've been in my thoughts. The "ass coming into work today" is a friggin' riot! To better days...
That sickness hits all the time!!! Maternity leave is nice! :)
I'm so impressed with your attitude and so sorry for you dealing with and going through all this. You are really handling it well.
What a beautiful pin!
I think I'm battling "anal glaucoma" too!
ttys!
Hugs!
I love the way you handle everything with humor and class. Have a great Sunday, Jodi.
If anyone can get the word out about Lymphedema it will be you!!
Loved your joke, dear girl!!
hahha, this joke had me laughing for sure!
I like the pin...very pretty and I hope that this disease gets more attention from those that can help!
BG
Didn't know you could fail at wrapping, but I have the feeling now that you failed it I'd probably suck too!
Love the joke - I had that a few times when I was employed, lol
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